Hi Everyone
Sorry it took so long for me to check in again. After our 11/30 visit, I went on vacation for two weeks (Wonder and WDW) and then it's been crazy holidays since.
Visit at the Neuroendocrine Center/Pit Tumor Center went very well. We were seen by two docs - the attending and a fellow, both women. Very personable and made us both comfortable.
Looks like this is a non-functioning macroadenoma. They have done more labs and nothing has shown up yet - except Vit D is low and testosterone is low. She is retesting the latter twice to see if it was because the labs were drawn in the afternoon. It was way below normal.
They asked us why we came to MA Gen instead of seeing someone in Maine first, and we said that we knew if surgery was involved, we wanted Dr Swearingen and also that we felt the endos in MAGen had more experience.
So the attending said that while true that 20% of population have pit tumors, the majority are found during autopsy and they are less than 2-3mm and won't bother anyone. Since DHs' is 10mmx14mm, his is much larger and is above the baseline so is a macroadenoma.
She then told us about Dr S and said he is not "scapel happy" like some docs and is conservative and may not recommend surgery. But she said that she does recommend surgery so to get it taken care of before it becomes a problem. She said she thinks Dr S is the best surgeon in the world in his field and that he has a "gift" for knowing what is tumor tissue and what is pit tissue so is very good at removing only the tumor and not much of the pit. She said to just let him know we want it done now, rather than wait.
It's 2-3 mm away from the optic nerve. I would say that is too close for me to want to wait, and DH thinks that too!
We have the next appointment on Feb 1st - we will see the fellow again, and then go to see Dr S.
Thanks for your kind feedback. So happy to hear of so many successes, I really wasn't expecting much because it's so rare to hear of pit tumor surgery.
I'll be back to update after the 1st (hopefully I remember earlier this time!)
Peace and good health to you all.