gabbysmom04
DIS Veteran
- Joined
- Jun 20, 2005
I just found this and am so happy for this board. I wanted to share my story of my son Dominic. My son was born on Nov 8th of 2005. We thought that we were having a healthy baby boy. When Dominic was born we found out that he had a bilateral cleft lip and palate. For my DH and I the world stopped. We were told that it could be fixed and not to worry. What I did not know was that he would not suck and I had to learn fast how to feed him. By the next day he was throwing up a lot. We were told at first that it was because of his cleft that he took in so much air that it made him throw up. The next day our son was taken for a reg. checkup in the nursery. When they came back there was a team of DRs who told use that they heard a heart murmur and that his stomach was swelling and that based on that and his cleft they told use that they thought he might not have a devoloped brain and that they thought that he had a fatal disorder. He was taken to the NICU where they brought in all sorts of DRs. They brought in a priest and told us it would be best to have a baptism. Soon after that my son started to vomit bile from his liver and was rushed into surgery. The surgery saved his life. He had suffered perforated bowel in utero, which has caused of of his bowels to leak into his body. He had a e coli infection from it. We found out later that he had a bleed in his brain, and three different heart conditions. Dominic spent two weeks in the NICU, one week was on a vent in a morphine coma. He has three operations on his cleft and looks like a perfect little boy. After months of working with him he is starting to walk and eating like a champ! This past year has been a horrible nightmare for my family. I am hoping to get myself of the floor soon.