OhanaDreams
Cute and Fluffy
- Joined
- Sep 22, 2012
"This is my family. I found it, all on my own. Is little, and broken, but still good. Yeah, still good"
We are a family of 3. Buglet is our miracle, and officially a Dream Factory wish kid. We got the call last night that he was accepted and approved by his physician. He loves Disney World so his wish was easy to make.
Our trip will be in February as Buglet suffers from autonomic dysfunction and can not tolerate heat. This is one of the after effects of an Acquired Brain Injury. Buglet has suffered from many medical and developmental issues that seemed to baffle the experts. When the cyst was finally found in April 2012 we had our answer. Since that time we have been trying to find the right set of physicians and treatments to help him. Right now we are waiting for appointments at the Minnesota Mayo clinic in January. We will be there for a week of testing and to see if a shunt can be put in to relieve some pressure on his brain.
Last May exploratory surgery was done and Buglet picked up a nosocomial infection. A week after discharge he was back with meningitis. He ended up being hospitalized 3 times because of the nosocomial infection. We are nervous about future surgeries.
We continue this journey with the hope of making new friends to add to our little family. More to add soon...
[We are a family of 3. Buglet is our miracle, and officially a Dream Factory wish kid. We got the call last night that he was accepted and approved by his physician. He loves Disney World so his wish was easy to make.
Our trip will be in February as Buglet suffers from autonomic dysfunction and can not tolerate heat. This is one of the after effects of an Acquired Brain Injury. Buglet has suffered from many medical and developmental issues that seemed to baffle the experts. When the cyst was finally found in April 2012 we had our answer. Since that time we have been trying to find the right set of physicians and treatments to help him. Right now we are waiting for appointments at the Minnesota Mayo clinic in January. We will be there for a week of testing and to see if a shunt can be put in to relieve some pressure on his brain.
Last May exploratory surgery was done and Buglet picked up a nosocomial infection. A week after discharge he was back with meningitis. He ended up being hospitalized 3 times because of the nosocomial infection. We are nervous about future surgeries.
We continue this journey with the hope of making new friends to add to our little family. More to add soon...