Hi everyone. I just wanted to pop in this afternoon to say "Hi, I'm still alive."
It has been a busy couple of weeks. I've been out of town a couple of different times for conferences, as well as doing a lot of end of year business and decision making for the farm in addition to the usual day to day office job. And with Christmas coming up, I don't see things slowing down. Hopefully by next week I can find some time to start reading through TRs and playing catch up.
Some of the busy has been appointments with LG. We had an appointment last month with a genetics Dr. Frankly, DW and I hated this clown. His bedside manners sucked and it basically felt like he wanted to diagnose LG with 4 or 5 different things after looking at him for about 2 minutes every time we saw him. He told us at our last appointment that he wanted to do some tests that our insurance probably wouldn't cover during our Nov appointment. Well, we prepared for this and spoke to other medical professionals, one of which has adopted a few children who do have genetic issues and she was one of LG's caregivers from day 1. We approached the topic lightly knowing she works with this guy. She was pretty blunt and told us as a friend and not as his co-worker to ignore him, LG is fine and that she can't stand him either. I walked in the door prepared to tell this guy we weren't doing the tests and we'd be requesting a referral for a second opinion elsewhere.
Well, it turns out he must have forgotten about what he said 6 months ago. We showed up and were sent into another room for a developmental test. They had LG play and do some tasks. They told us that 85 is basically the bare min, but 85-100 is good. There was a fine motor test and cognitive test and LG scored over 100 on both. So we were discharged from that Dr's care and barely had to even speak to him on our way out. Gotta say, that was great news. I couldn't get out of there fast enough.
We had an appointment earlier this week with his surgeon's team and things with his diaphragm look good. We don't have to go back for about a year as long as we don't notice any indications of problems. LG was running around the office and just being a typical loud, happy kid and they were all really impressed with how he looks and how well he's doing.
We have an appointment tomorrow for a CT scan to maintain a baseline on some things and then a routine exam with neuro, so hoping things go well there. He has a shunt and they say that it will likely need to be replaced sometime around 2 or 3 years old, but hopefully things are good and we'll be good to go for a while still.
Anyway, that's just part of what we've been dealing with the past few weeks. Sorry I've gotten so far behind and I'll be back sometime to catch up with everyone!