Make a Wish (and other organizations) ~ Wish Trippers UNITE! Volume FIVE!!

[taliasmom]

Good to hear

Well, we were almost home (90 miles) from the hospital when they called and said they took a second look at her x-rays and she has the beginning stages of pneumonia. "Just bring her to her pediatrician if she starts coughing or has breathing difficulties", yeah...

 

[angel's momma]

So sorry Kristy. You're right, it just doesn't make sense. I'm tired, and not thinking very clearly right now - what was the original plans for your transportation? Praying that everything works out for Ava to get her wish.

Charolott - So glad Talia is doing better, and is home. Sorry they didn't look at the x-rays properly the first time. Continued prayers.

 

[Lilfoot93]

WE HAVE DATES!!!! April 28 - May 4 at GKTW!!!

Yay for dates!!!

Ok. Our wish is just disastrous. They said whoever stays with us has to travel with us. You would think they'd be happy to save money on a plane ticket. So now, our plan has changed. If we drive, they won't contribute to the cost of driving at all. Not sure what to do. Looks like we either need to pay gas for two of our vehicles to drive or we fly and pay for all of my moms tickets and such out of pocket. But, that can't happen either. Because of my medical issues, I can't stay in the village by myself with the kids. I just want to cry.

(((HUGS))) Praying they can get everything straightened out.

Talia gets discharged from the hospital today, just some tummy coating meds to take for two weeks, she's doing fine though. On to next week!

Yay! Glad she is being discharged!

Jackie

 

[Kktraylor]

So sorry Kristy. You're right, it just doesn't make sense. I'm tired, and not thinking very clearly right now - what was the original plans for your transportation? Praying that everything works out for Ava to get her wish.

Charolott - So glad Talia is doing better, and is home. Sorry they didn't look at the x-rays properly the first time. Continued prayers.

Our original plan was for me to fly with my three kids. And my mom ride with my husband and other four munchkins. That way he'll have some help on the long trip...he won't be able to do it alone.

 

[taliasmom]

Our original plan was for me to fly with my three kids. And my mom ride with my husband and other four munchkins. That way he'll have some help on the long trip...he won't be able to do it alone.

How old are the kids, old enough for the older ones to help? I know it's a lot to handle regardless, but my son has been a huge help since he was about ten.

 

[angel's momma]

Our original plan was for me to fly with my three kids. And my mom ride with my husband and other four munchkins. That way he'll have some help on the long trip...he won't be able to do it alone.

Did the info come from the coordinator, and does she know all of the details? Maybe you need to talk to someone above the coordinator? It just doesn't make sense, because your mom wouldn't necessarily even need transportation - like if she lived in FL, or a nearby state. I know it's already hard trying to get it arranged for all of the kids & your mom to go, but is it possible that another adult would be willing & able to travel with DH & the kids? I'm guessing DH could use some help where they'll be staying too. Lots of hugs.

 

[Mom2M07]

Our original plan was for me to fly with my three kids. And my mom ride with my husband and other four munchkins. That way he'll have some help on the long trip...he won't be able to do it alone.

Could your husband drive through the night? That way, the kids could sleep, and he may be able to handle them all on his own. Just trying to find some way to make this all work for you guys.

 

[LittleEsmom]

Ok. Our wish is just disastrous. They said whoever stays with us has to travel with us. You would think they'd be happy to save money on a plane ticket. So now, our plan has changed. If we drive, they won't contribute to the cost of driving at all. Not sure what to do. Looks like we either need to pay gas for two of our vehicles to drive or we fly and pay for all of my moms tickets and such out of pocket. But, that can't happen either. Because of my medical issues, I can't stay in the village by myself with the kids. I just want to cry.

So sorry you are having such a awful planning experience
Hopefully, when you all get there it will all be worth it Praying it all works out. Much love and ((((HUGS))))

 

[Kktraylor]

How old are the kids, old enough for the older ones to help? I know it's a lot to handle regardless, but my son has been a huge help since he was about ten.

The ones that will be riding with him are 9, 6, 5, & 4

 

[Kktraylor]

I think we're just going to pray the 15 passenger van will make it and all ride together. Ava won't get to fly, but it's the best we can do. And if we don't get gas money, then we don't get gas money. I just wish they would make this a little easier on us. I think they may just be a little upset that we're determined to bring all the kids.

Kristy

 

[Nurserynurse]

Hi! I'm Julie and I'm new on the board. My daughter Jenna was dx with leukemia (ALL) in August 2011. She's undergoing treatment until February 2014. I wrote a bit about her story in our PTR. She's such an amazing kid! We were going to wait until she was off treatment to let her make her Wish. But, she started begging us to take her to DW every day, so we decided that the time must be right.

Her doctor submitted the paperwork to MAW a few weeks ago and they moved fast. We had a meeting with her Wish Granters last Thursday and the next day they submitted her wish to go to Disney World. We are hoping to go in April, but know that it would be a pretty quick turn around and we're not sure how busy GKTW is that time of year. Hopefully we will hear back from MAW soon with dates! I can't wait to start planning our trip!

Check out our PTR . I look forward to getting to know everyone on the board!

Hi Julie! I'm new to the boards also. My son, Austin, was diagnosed with A.L.L. on 1/20/10, and he goes off treatment in 14 days!!! I can't believe the end is in sight! I just wanted to say welcome and let you know that we leave for GKTW/Disney on April 6th. Welcome!

Holly

 

[ajjwmaw]

Thanks for such a warm welcome!

Big news!!! I just got a call from Jenna's Wish Granter and her wish is approved and we have dates! June 8-14 at GKTW. I'm so excited for Jenna that this is happening! I know that you all understand the mixed feelings - I still can't believe that my baby is a Wishtripper, but I'm also so proud of everything she has been through and so happy that she will get such an amazing experience.

We will be extending our trip through the 22nd. Does anyone know if any of the MAW privileges carry over when you extend? We are happy either way, of course.

Yippie!!!

 

[angel's momma]

Kristy - Sorry Ava won't be able to fly. I know that the van will take a lot more gas than whatever smaller vehicle DH would have driven. Praying that the van will be mechanically sound for the trip. I think I've read PTRs where the child wasn't able to fly at all, and gas & lodging was provided. Did they tell that they definitely won't cover any of those costs if you don't fly? They originally wanted us to drive 3-4 hours to an airport, and said they'd pay the gas, food, and lodging if we did. If they're upset that you're taking the other kids, that's ridiculous, and it really doesn't concern them at all. I'm sorry this has been so hard. We do know how frustrating & upsetting that is. Praying everything falls into place for you.


Holly So wonderful that Austin is just about done with his treatment! Sorry he's been through so much. Yay that he is getting his wish.

 

[JWCJ]

I think we're just going to pray the 15 passenger van will make it and all ride together. Ava won't get to fly, but it's the best we can do. And if we don't get gas money, then we don't get gas money. I just wish they would make this a little easier on us. I think they may just be a little upset that we're determined to bring all the kids.

Kristy

Kristy, that is ridiculous if they're upset that you want to include your whole family. I really hope that isn't the case, because I don't want to think that wish grantors would be like that. I think if you're told that gas won't be covered you need to speak with some MAW higher-ups.

Hi Julie! I'm new to the boards also. My son, Austin, was diagnosed with A.L.L. on 1/20/10, and he goes off treatment in 14 days!!! I can't believe the end is in sight! I just wanted to say welcome and let you know that we leave for GKTW/Disney on April 6th. Welcome!

Holly

Hi Holly! Welcome! That must be an amazing feeling to know that treatment is almost done Yay for your trip almost being here

Thanks for such a warm welcome!

Big news!!! I just got a call from Jenna's Wish Granter and her wish is approved and we have dates! June 8-14 at GKTW. I'm so excited for Jenna that this is happening! I know that you all understand the mixed feelings - I still can't believe that my baby is a Wishtripper, but I'm also so proud of everything she has been through and so happy that she will get such an amazing experience.

We will be extending our trip through the 22nd. Does anyone know if any of the MAW privileges carry over when you extend? We are happy either way, of course.

Yippie!!!

Hurray for dates!!!!
I totally get what you're saying about the mixed feelings.

 

[ajjwmaw]

Holly, so exciting that ot is so near! It is such a long journey.

Kristy, I hope that they work with you. I know that our chapter (KC and St Louis) had paperwork that said that if you don't fly they pay for some lodging and gas. I can't remember for how many days.

 

[ajjwmaw]

Holly, so exciting that ot is so near! It is such a long journey.

Kristy, I hope that they work with you. I know that our chapter (KC and St Louis) had paperwork that said that if you don't fly they pay for some lodging and gas. I can't remember for how many days.

 

[ajjwmaw]

Oops, sorry for the duplicate posts.

 

[taliasmom]

The ones that will be riding with him are 9, 6, 5, & 4

Well, not much help there. Something doesn't seem right about the gas, maybe a supervisor can be called. Hope this all smooths out.

 

[angel's momma]

Julie - Yay for dates! Glad you were able to extend.

 

[Lilfoot93]

Thanks for such a warm welcome!

Big news!!! I just got a call from Jenna's Wish Granter and her wish is approved and we have dates! June 8-14 at GKTW. I'm so excited for Jenna that this is happening! I know that you all understand the mixed feelings - I still can't believe that my baby is a Wishtripper, but I'm also so proud of everything she has been through and so happy that she will get such an amazing experience.

We will be extending our trip through the 22nd. Does anyone know if any of the MAW privileges carry over when you extend? We are happy either way, of course.

Yippie!!!

Yay for dates!!! That is great you get to extend!!

Jackie