The THYROID Thread

Discussion in 'Coping and Compassion' started by Christine, Nov 11, 2006.

  1. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    Hi Peeps who wants to hear a nice neck dissection story I know you all do so it will come momentarily lol

    macraven - I hope you are off the bed rest now and able to move around a little and that the blood clot news is better. Let us know. Prayers for you

    singing mom - I guess you are on your way to nice sunny Florida

    Christine - glad your ds has a good internship, I am sure there is lots of news in your area today.

    Well I survived this surgery. I just wish for once I could just be a normal surgery patient but that will never happen. I told you this surgeon just does not take any time with you. I guess the top NYC cancer surgeons are very much in demand so I guess I should understand.

    Ds1 decided to come along so they had to find a room with 2 queen beds they finally did and it gave a good discount for the hospital patients which saved us a lot of money.

    We got there in plenty of time leaving at 5 am for the 830 surgery. Got there like 645. They said I would wake up with a cpap machine, fine. Then the or is so small. I felt like it was clowns in the clown car. I counted 8 people and then they were calling another surgeon to put an arterial line in me. The surgery was suppose to take 3 hours and it took 4. They didnt know if I would even get a room and I finally did on the floor. I woke up and had a terrible pain in my R arm. No one seemed concerned about this. They were concerned about this road rash burn looking type thing on my L shoulder. sigh.

    Finally got a room on the 13th floor. This is a mother and baby floor. My roomates mom was allowed to stay but dh was not, no males overnight. It was a strange floor. Ds2 saw a little boy leave with a last day of chemo shirt on and then you hear crying newborn babies.

    Sat. morning the surgical resident came in and pulled the drain, ouch, ouch and more ouch and then took the neck staples out but on surgical glue and a new bandage. Finally the surgeon came in. He was operating as he had on surgical scrubs. He said he caused the burn/road rash thing on my shoulder because of the grounding. I think from the laryngeal nerve box monitoring. It looks terrible but does not hurt. Then I said look at my arm. He got so mad and I think he was yelling at the nurse out in the hall. It really was not her fault it was the ones before her who did nothing. He said I have thrombo phlebitis in my arm, so now I have antibiotics for 7 days, warm compresses 3 times a day and arm elevation sigh. My neck is sore and I feel week. I try to take the percocet when necessary. He also said it took longer because there was scar tissue and he had to untwist lots of veins and arteries that were in the wrong pace and we will talk about this in the office.

    So my next apt. is monday and hopefully we will have the path report back by then. We are leaving at 5 am to avoid the worst traffic and will just hang out in the hosp. lobby until its time to go over to his office.

    Oh the food there was really gourmet, Too bad I couldnt eat or swallow most of it, lol. My voice was bad but its getting better. Ds2 and his gf also came sat to see me. We had 5 visitors in the room at once lol.

    Hope everyone is doing well.. Check in when you can.
     
  2. macraven

    macraven Proud Redhead Moderator

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    Pray the surgery was a complete success!!

    You will find out Monday
    I can imagine the pain you are going through

    Let us know how visit goes

    Prayers still being said



    About me, another blood clot

    I see a new doc tomorrow
     
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  4. Christine

    Christine Would love to be able to sit on

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    LMP, glad to hear it all went well and glad it's over with for you.

    How did you get the thromboplebitis in the right arm? Is that from the IV line? That is so weird.

    Hoping for good news on Monday!
     
  5. SingingMom

    SingingMom DIS Veteran

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    LMP - God love you! You've been through SO MUCH! I hope this is the LAST one!! The thrombophlebitis angers me. That's something that should have been noticed when you first mentioned it. Grrrr.... I know medical staff is overworked (my mom & sister were both RN's in large hospitals) but that's just careless. I hope you feel better. Take it SLOW. Can you take something other than Percocet? I hate that stuff. Just made me wonky - didn't help the pain, so I stopped taking it. I like morphine. LOL

    Enjoyed my visit with DD - did "mom stuff" like pick up her bridesmaid gown to bring home, etc. but the weather was icky. She worked a lot, so we had a few late dinners. I had some free time, so I cleaned her apartment (lol) met my cousin for lunch, went to noon mass on St. Anthony's day at the Basilica, and went shopping at the outlets. DH and I are returning mid-July for a mini-vacation with our friends. DD booked us at POFQ but they called & said they overbooked & would it be ok if they moved us to Boardwalk! Umm... YES! Never stayed there before. She'll stay with us, but I'm not sure of her work schedule yet. She's been working at least 52 hours a week. But, she loves her new spot in Fantasyland. Keep making that magic!
     
  6. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    macraven - how did the visit with the new doctor go. I hope he had some better insight to your issues and has come up with a good treatment plan that will help you to get to feeling like yourself again. Hang in there. You are in my prayers!

    Well peeps gather round for another nice chapter in The Thyroid Cancer Story, hmm this chapter should be titled "Just because you go to a top hospital in NYC and see a top surgeon you will still shake you head and go hmmm! lol

    Also I think these trips into NYC are wearing on dh,. I hope the next one in July will be the last one. We have to leave well before 5:30 am to avoid all the traffic and we just hang out there. Dh even came home and took a nap before going into work for a little while.

    I am glad we were the first appt. at 9am. Only one other guy waiting. As usual he spends very little time with you. He took the bandage off and said my choking feeling and tightness is due to all the neck swelling which will subside over time. Went over scar care. I said I am not one of those vain type people. Hello dr. - look at my neck already, lol. Then we ask about the path report,. He said he took out 18 lymph nodes and 4 were cancerous. The biggest one was 3 cm. The path report said 3 mm, huh??? Head shake. He said the best part was that there was no extranodal extension and that is all they care about. Obviously when I asked him well what about the columnar cell variant. He said its just met pap. If you want me to have the path people look at the lining for the variant I can ask them to do that. Um shaking my head. Wouldnt they do that anyway at a top place. He said the aggressive variant does not matter. Um. I know this guy is on these top boards of stuff in the country but what DOES matter??? I think what does is the production line of people he had in the waiting room when we left 45 minutes later there were another 6 people waiting. OK His surgical skills are good but everything else, sigh, sigh, and more sigh.

    Remember he said he would discuss why the surgery was longer and the tangled arteries and veins. I forgot to ask and dh says why didnt you ask after we left, sigh. The surgeon did not bring it up. Well next visit this will be asked by me for sure.

    I made him look at my arm and he said its healing well and the anesthesia people caused that. um ok.

    I wanted to shake his hand and say thank you but he seemed to pull back so I ddint pursue that. Strange indeed.

    I guess I would go to him again if I really had to because anyone is better than dr. who almost killed me. I saw his reviews on line and people wrote run and stay away from that guy lol. Dont I know it for sure!!

    My neck is itchy and sore and swollen and I only had one choky feeling lately where I did almost choke on something. So its a process.

    Later dh said lets start planning that october trip to food and wine, what a hubby!

    He did say there is a 5 to 10% chance that it will recur. I asked that. He didnt offer that info on his own. That will probably be me again with my history,

    Happy First day of summer everyone!
     
  7. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    Greetings fellow thy people!!

    macraven -how are you???

    Well I am whiny My neck is sore and swollen. Its like a huge lump in a certain area. I touched it a little. It seems like it would be fluid that would drain into the jp drain if it was still in maybe???

    Dh is concerned about it. Ds3 said - yes its swollen. I know dh doesnt want to drive into the city, so we did talk about sending a picture to the surgeon if necessary. I know it will take a while but I just dont like the look and feel of it. My next appt is not until July 24th. So I will see if I should do anything.

    Ds3 also got a cold from a patient and ds2 has some of it plus allergies so I am telling them both not to get to close to me because I def. dont want that.

    Oh and I forgot to type last time that we did ask the surgeon about follow up testing and how the endo feels about it - pet scan. He said if she really wants the pet scan, um I dont. He said it would maybe be 3 years of pet scans once a year and then a sono also once a year. I said I currently do a sono every six months, not her recommendation, she is for a yearly one too but I told him I feel better with 6 months. He also forgot that I told him before my tg goes not register and I am non avid rai now. gheesh. Cant he review the chart again??

    he said it will actually take 6 months for any cancer to grow back (thy) so that is the first time you will actually pick it up and see it on any test. He said if I am happy with the every 6 month sono then that is o.k.

    And what else did I do today why pay for another endo copay. This time she charged like $225 and that was just to talk surgeons and give me all the print out stuff to take. Didnt even check my neck, gheesh. Also got some nice toll bills for going into the city, Cancer is $$ lol! Dont we know it!!

    Check in when you can.
     
  8. Christine

    Christine Would love to be able to sit on

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    Hello, LMP. Yes, you should get the swelling checked out. Probably localized swelling but who knows and you don't want to get into an emergency situation.

    Nothing much going on here. I've been working on a replacement countertop project in my house and it's consuming. My husband painted our 23 year old cabinets so the existing (laminate) countertop looked awful. Moving to granite finally but wanted to keep it on the lower priced end, which has been difficult. In the middle of it all, I've decided to remove some lower cabinets that make up a "desk" in my kitchen. Totally useless. So I'm going to fill that area in with some new (cheap IKEA) cabinets painted to match mine and I'm really excited about those. But just more work!

    My son is in week 4 of his internship. He likes the job--hates the commute. Just about 2 hours home each night. Traffic is awful around here. But it's not forever. At the end of July, he goes to Charlotte, NC with the company to some big conference. He has to give some presentation there and "work" the conference. So it's all good experience.

    I'm looking forward to the July 4th holiday. Taking off the 3rd to give myself a 4-day weekend.

    Hope everyone else is doing well and, macraven, I hope things are improving for you.
     
  9. macraven

    macraven Proud Redhead Moderator

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    Hello friends!!!

    Well I am 8 weeks and few days out from surgery and the clots finally have dissolved
    Stopped Coumadin finally

    Knee double the size as I have swelling issues
    Ortho doc said it should be better at the time of six months out period

    Did get established with family
    practice doc as unable to get appt with any endo docs

    Let's say it is out of the frying pan and into the fire

    He told me I do not need t3 or t4 lab only tsh for prescribing me synthroid and he has given me a referral for a surgeon ent for the parathyroid gland issue

    Really do not think I will use this doc as he hasn't limited experience with parathyroid glands

    All he is aware of my test results show I need surgery

    Thinking of checking Vanderbilt or Emory for this surgery

    Had planned to redo flooring in the house for the upstairs rooms
    But just looking online for supply costs and once I have that figure will seek out contractors on face book in my area

    Figure one of our projects can be started on within the month

    And now going to try to find someone to mow our yards
    It has become to much for Mr Mac in the heat here
    We have almost an acre of land and we only have the push mower
    It is a weekly job

    Usually late February is when we have to start mowing
    Last November end of the month was last of the year for lawn care

    But do enjoy warm weather most of the year

    Christine, hope your remodeling goes smooth

    LMP hope you can do the pics with the surgeon and do not have to make the extra drive to the city to have it looked at

    Who all has trips coming up?

    Mine is October but need to book a flight
    Could not book until dvt issue dealt with
    Now I see prices are high for my travel
     
    Last edited: Jun 28, 2017 at 8:16 PM

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