Thank you again for your kind words- I am as prepared as I can be -for Monday.
We have video-IEP goals- he has met 1/2 of them already- talking more-
the school speech therapist came to a visit to Children's Hospital with me- communication enhancement center--we go every 6 mos since preschool- B now in 9th grade!
school district never interested or came to any trainings with the Dynavox guy-he already came to the new school- met with all people involved with B and on the books for 2 weeks.
I got a wpn that is dated aug 29th but it is not the one I signed that day- they want in district placement for access to typical peers and be in his own community.
they want me to sign this one with more info on it-
they finally sent me a vocational assessment form to sign- I already agreed-after finding out what tests they were going to give- new school found a lot of low tone-weakness in upper body-feeding and swallowing- perhaps this is why no speech!!!!
I felt so bad-but you can't know what you don't know
so i am going to go after compensatory services also-If my advocate agrees-
1st I want bren to stay there
transportation reimbursement and tuition, therapy, and lunch reimbursement for B. lawyer fees-- me or my DH drive him an hour away and back each day-twice a day for us.
anything else is a bonus.
I have a blurb from a newspaper in my city interviewing the superintendant of schools- one this that upsets him is "not being able to provide educational services for all children " gotta love that!
Wish me well on Monday!
I really want someday to be able to start a fund for families like me who have had to put up some significant amounts of money for our kids to get an education! I had a lot of help from family.
and not worry about car payments, house- utilities- there has to be a different way for kids to have what they need- it is the cheapest thing for the city to have goals of opening and closing containers and looking in the mirror to make sure your lunch is off your face- how long are you going to "work" on hanging up your coat- these are all important skills but the kid may need a picture- and it clicks! verbal cues -the kid may never get it.
it may be an apraxia thing- not defiance