The THYROID Thread

SingingMom · Aug 25, 2016

Exciting (non thyroid) news that I had to share! DD is now a permanent cast member! She will be in Children's Activities and Recreation at two of the resorts! Her current employers (high end resort) were happy for her and were very understanding - they told her she was always welcome to return! But, DD relocated to Florida after college graduation for a career with DISNEY, so she is THRILLED! So are we!!
:earsgirl:

macraven · Aug 25, 2016

Such exciting news!!!!

I love this message

Christine · Aug 27, 2016

SingingMom said:
Exciting (non thyroid) news that I had to share! DD is now a permanent cast member! She will be in Children's Activities and Recreation at two of the resorts! Her current employers (high end resort) were happy for her and were very understanding - they told her she was always welcome to return! But, DD relocated to Florida after college graduation for a career with DISNEY, so she is THRILLED! So are we!!

That's wonderful news!!! Glad it all worked out.

bellanotte10 · Aug 27, 2016

Hi all! I posted here a few years ago when they found a small cyst on my thyroid and no one thought to tell me to follow up on despite me asking.... Finally someone agrees and referred me to an endocrinologist....came out with a diagnosis of hashimoto's! No treatment needed at this time but I do have to go gluten free and lose about 10 pounds and I am so overwhelmed and I don't even know where to start

macraven · Aug 27, 2016

bellanotte10 said:
Hi all! I posted here a few years ago when they found a small cyst on my thyroid and no one thought to tell me to follow up on despite me asking.... Finally someone agrees and referred me to an endocrinologist....came out with a diagnosis of hashimoto's! No treatment needed at this time but I do have to go gluten free and lose about 10 pounds and I am so overwhelmed and I don't even know where to start

I have this same diagnosis and was started on synthroid that day with my doc

Any reason he did not start you on any med?

My levels were not easy to get the right level in the beginning
It took three years before I was at the correct dosage and 18 years later my levels were still up and down

For some peeps it is better and the dosage only has to be tweaked seldom

Do you have to go back in 3 months or so and have your thyroid levels rechecked ?

I would call and find out your endo's plan for you

I started out using my internist for my treatment and he eventually referred me to a endo doc as he could not understand the great change levels on my blood work

I hope it goes fine for you and you stay with us to chat about it

The added weight happened to me but it has gone up and down based on how much synthroid dose is

I can't take the generic meds for my hasimoto

Christine · Aug 27, 2016

bellanotte10 said:
Hi all! I posted here a few years ago when they found a small cyst on my thyroid and no one thought to tell me to follow up on despite me asking.... Finally someone agrees and referred me to an endocrinologist....came out with a diagnosis of hashimoto's! No treatment needed at this time but I do have to go gluten free and lose about 10 pounds and I am so overwhelmed and I don't even know where to start

I have not heard of going gluten free for Hashimoto's? What's the reasoning for this?

macraven · Aug 27, 2016

I wondered if she had another condition for going gluten free

I was thinking she wanted to be gluten free to help lose the ten lbs

Not had any doc or endo talk about gf due to thyroid

bellanotte10 · Aug 29, 2016

hi I'm back! was wicked busy running around grabbing records and paperwork and packing for a Disneyland trip! Thank you for replying!

no meds at this time because he's still doing baseline tests ( antibody tests, tsh checks, another thyroid ultrasound). he's pretty sure i'll have to go on them ,but he just wants a baseline before he puts me on them, then i'll go back in 6 months and get rechecked, and we'll decide a final course of treatment then. However if the current labs come back completely irregular then i'll get put on them immediately. I just had my thyroid checked as part of my annual, so lots of tests to use as a data to see what's going on, then determine a dosage.

Gluten free is because a lot of people with Hashimoto's have a gluten sensitivity. I also have IBS so he thought it would help. I've seen a few people on another message board get told they should go gluten free, and there are specific Gluten free for Hashimoto's cookbooks I saw on amazon when I was looking for more information.

So you're right, there is something else, but he also said it should help with the Hashimoto's, if anything to alleviate something until he can see me again to see whats changed.

macraven · Aug 29, 2016

This is the first time I have read those with hashimoto have a tendency to be gluten intolerant

My endo's have not mentioned that

I'll google it and see if this is a new theory

luvmarypoppins · Aug 31, 2016

singing mom - congrats to your dd. I am sure she is thrilled! Glad her dream came true.

bellanotte - interesting about the correlation. My sons gf is gluten free and takes synthroid but I really dont know if she has hashimotos or not.

macraven - do you do any of the F and W special events. Have you done the dining package. Last time we just stood in the back and it was like 4 deep for the concert but it was some band that was very popular, I forgot who. We just usually snack for lunches around the world.

Christine - sure your ds is back to college. Hope things are going well for you. (no neosebleeds etc)

Well I just made my blood test appt. for saturday. I have to work around dh schedule and then I made the sono appt. gheesh I cant get an appt. until Sept. 16 and I told the lady that my apept. with the dr. is the 20th. I like to get it done there since the dr. can just get the results asap but I know the nurse at the endo place usually calls like 2 weeks ahead of time and says where are your test results etc. I will just tell them when my appt. is. Usually I only have to wait a week. Looks like lots of sick people and testing.

Our summer didnt exactly end on a good note. Last sat. we got rear ended. When dh gave me the police report I couldnt believe it was a boy ds2 went to grade school with. He had a concussion and they took him to the hosp. Now dh is trying to work with his ins. company and its not going well. The lady says we have no record of him - wth?? So strange - his father came knocking on our door asking how we were. He said he didnt remember the boys being in school together. Only dh went out to talk to him. I thought the whole thing was creepy and inappropriate. I just pray he has ins. because our van is driveable but messed up for sure.

So I havent made any plans yet for the oct. trip to Disney. We will probably go the 3rd week and ds3 wants to go with us, um I dont know about that. He rushes all around and we like to take it easy.

SingingMom · Aug 31, 2016

Sorry to hear about your car, MP. Never a dull moment!

We snack (and drink! lol) around the world during F & W. This year I'm going to be extra particular on what I eat. The strange combos did a number on my stomach last year! I'll stick with Greece and France!

Heading down for two weeks to help DD move to her new apartment. It will be the longest I've ever stayed in Florida and the longest DH and I will be apart since we're married! Hopefully he won't starve! He is meeting me the last weekend and flying home with me. We need him to do some "daddy chores" for her new place! She is SO EXCITED to start her new job! :earsgirl:

macraven · Aug 31, 2016

Well, leaving Bushnell as the funeral for both parental units now over

Will leave tomorrow if weather improves to return home

Christine · Aug 31, 2016

luvmarypoppins said:
Christine - sure your ds is back to college. Hope things are going well for you. (no neosebleeds etc)

Yep, son is back in school (but he's been gone most of the summer anyway). No more nosebleeds but I was about 7 months between the last two. I did finally see a GP for them and he ran a battery of tests to ensure that I didn't have some underlying condition, but all checked out well, so he chalked it up to fragile superficial blood vessels in the nose probably exacerbated by menopausal changes (dryness, thinning skin). Or it's just a fluke. Nose looked good, no tumors or lesions there, so at least I don't have to worry about freakish things!

luvmarypoppins · Aug 31, 2016

macraven said:
Well, leaving Bushnell as the funeral for both parental units now over

Will leave tomorrow if weather improves to return home

So sorry for your loss. Sending you my deepest sympathy and prayers

macraven · Sep 2, 2016

Thank you LMP
Still in Ga waiting for better weather so I can start the drive home

luvmarypoppins · Sep 13, 2016

Happy Thyroid Cancer Awareness Month everyone!!

singing mom - I hope you have a great trip and get your dd all settled in.

Interesting abut Bellanottes comment about the Hashimotos and gluten free. Just met ds2 girlfriend and she told me she dos has Hashi's!! and as I posted before she is gluten free!!

Going for my sono on Friday. I hope I get my usual tech. The other one I had once was a little too rough.

The dilemma goes on about our van. The other company keeps insisting they have no record of him yet they sent out an adjuster to look t the car? Dh said this was done at his insistence. (dh). He is going to the auto body shop tomm. That is where the kids car was towed to sot they must have some record of something. I have a feeling something fishy is going on. I told dh to call up the parents of the boy as the dad didnt think anything of us and showed up on our door step. I hope he will be honest at least. I really dont want to go through our ins. as we just got that ins. and I am sure they will drop us like a hot potato if we file a claim. I told dh if the cop saw his ins. card then the only other explanation was he didnt pay the premium of the policy perhaps. Its such a difficult situation. sigh.

Oh and in other news dh says now he might not be able to go on the disney trip and I should just go with ds3. I said I dont want to go with him because he has been pretty impatient about things lately and has an attitude. I dont want to deal with that, its suppose to be a vacation after all!! I took so much time planning and making the adrs one day. Oh well at least we didnt book the room or do the flights yet. I dont think this will work out because the longer we wait the more expensive the flights will be, but dh has some big project deadline and must be there etc. Such is life.

Check in when you can.

luvmarypoppins · Sep 16, 2016

Well the sono is done. I had my usual great tech G. whom I just love. She is the sweetest. She told me the lymph node is still there. I noticed she spent alot and I mean alot of time on the R side and practically ignored the L side. She said the radiologist did not ask fr anymore pictures after he/she looked at the ones she did.
So I dont know what to make of this. The last time the radiologist report said it appeared not to be cancerous. The endo thought if it was swollen /enlarged due to that infection I had then it would take up to 6 months to go away and be resolved, hello its now six months.

I told dh I notice my ear is still getting clogged and not draining right so I dont know if there are some other issues there. So maybe this is nothing, maybe its something . Such is life.

We will see what the endo says on Tues.

This time they made me pay $35 for the sono. Hmm, in March I paid nothing. Go figure that one. Well the hosp. is very good about giving you your money back if they have to. I wasnt going to argue with the billing lady.

prprincess · Sep 16, 2016

Joining in on the convo. I was diagnosed with thyroid cancer back in late 2010...hence my joining the boards, leaving, and coming back. I kinda became a bit anti-social after everything happened.

Long story short, I was diagnosed with nodules and hyperthyroid back in 1992. I had numerous biopsies and was put on synthroid, and then in 2009 and 2010, the nodules that were drained kept redeveloping fluid and upon testing, I was told there was a 20% they were cancerous, so I agreed to have my entire thyroid removed. I underwent radioactive iodine treatment in early 2011. I've been clean since then, except for some enlarged lymph nodes that I have monitored via ultrasound every two years. And of course the removal made me hypothyroid and I'm on levoxylthyrine for life.

Not only did the entire experience change me mentally--it gave me a new perspective on life, and taught me who my real friends/family are, but it also has changed me physically. I'm on top of my game medically, where I try and take care of myself the best that I can and monitor my levels on the regular, but am living a new normal where I just don't feel 100% at all anymore. I also feel that my health has deteriorated--on top of the typical hypo symptoms, I also have two other acute conditions--sinusitis and TMJ arthralgia. It gets me down sometimes, but hey, at least I'm still here!

Just thought I'd share my story. Glad to have found this thread and to know that I'm not alone!!

macraven · Sep 16, 2016

Prprincess, so glad to have you join in and share!

We are a small group but everyone here is absolutely a sweetheart

MLP is our leader and I'm sure she will be back to welcome you also

No cancer for me yet as far as I know
Have not found an endo for the parathyroid gland issue

My head is in the sand and I have quit thinking about it

I take my synthroid daily for hashimoto and it works for me

Christine · Sep 17, 2016

prprincess said:
Joining in on the convo. I was diagnosed with thyroid cancer back in late 2010...hence my joining the boards, leaving, and coming back. I kinda became a bit anti-social after everything happened.

Long story short, I was diagnosed with nodules and hyperthyroid back in 1992. I had numerous biopsies and was put on synthroid, and then in 2009 and 2010, the nodules that were drained kept redeveloping fluid and upon testing, I was told there was a 20% they were cancerous, so I agreed to have my entire thyroid removed. I underwent radioactive iodine treatment in early 2011. I've been clean since then, except for some enlarged lymph nodes that I have monitored via ultrasound every two years. And of course the removal made me hypothyroid and I'm on levoxylthyrine for life.

Not only did the entire experience change me mentally--it gave me a new perspective on life, and taught me who my real friends/family are, but it also has changed me physically. I'm on top of my game medically, where I try and take care of myself the best that I can and monitor my levels on the regular, but am living a new normal where I just don't feel 100% at all anymore. I also feel that my health has deteriorated--on top of the typical hypo symptoms, I also have two other acute conditions--sinusitis and TMJ arthralgia. It gets me down sometimes, but hey, at least I'm still here!

Just thought I'd share my story. Glad to have found this thread and to know that I'm not alone!!

prprincess, Welcome!!

I understand all of the emotions you have gone through as I did so myself. It really did change me. I was diagnosed and had surgery in 1995 and RAI treatments went on through 1998. I will tell you, I didn't feel well or 100% as you say, for a very long time. To be honest with you, it's only been since probably 2007/2008 that I actually began to feel back to my old self so you can see that it was probably more than 10 years after my diagnosis that this happened. In looking back, I don't think I can totally blame thyroid cancer. I was diagnosed at age 31 and I also had two small children at the time. Once my treatments were over and I was starting to hum along, I think perimenopause may have just been starting. At any rate, my lifelong heavy periods were getting me down and I spent most of my 40s in some sort of borderline anemia and I felt awful all the time. Now that I am in the very last stages of this menopause thing, I am feeling much better. My periods have pretty much stopped and my blood count numbers are looking SO much better. Granted, the hot flashes are keeping me up at night but otherwise, I have a lot more energy and stamina. So while I did blame a lot of my "not quite 100%" on thyroid cancer, I think it may have been other things contributing.

I do have issues here and there with medication. Sometimes, I'll just get too hyper for some reason. Oh and I had a rough year when they pulled Levoxyl off the market and I had to switch brands. But otherwise, at 52 I am feeling as normal as anyone else I know that's my age.

The THYROID Thread

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