Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[alaskanabbott]

I want some! Where do I get some? James' tube is always giving me trouble!

 

[alaskanabbott]

Ok so can I DEMAND a trip report??Ok then I will beg. PLEASE???
It was so good to meet you too! We had quite the adventure too with my mil But I will save that for my TR So we know 2 things. No more trains and no more 2000 mile road trips right?

Wow I am so sorry to hear about your adventures! Not the adventures your supposed to have in Disney! When we came out of the Gingerbread House Ty saw the Gingerbread man.He wouldnt walk up to him though. He wouldn't even walk up to Mayor Clayton and we had to beg him to go up to Mickey. He was a little frustrated because we didn't bring his headphones to GKTW and it was a little loud at times. I hope you are all feeling better and are able to get caught up on some rest. I'm definately glad you are HOME! Seriously did I ask you to do a TR yet?? Ok I'm asking again! lol

I am lagging in my TR. It's been crazy here with school being out due to snow. I will get to it I promise. Still thinking of a good name. I will be ordering the photopass pictures soon. It was so good to be able to go back and see GKTW. The smile on Ty and Sierra's faces was unbelievable. It will always be a part of them and I am so thankful to them for that. Going back trully felt like we were "home".

To all of the families here-Hope everyone has a Very Merry Christmas!

We are headed back the end of January, and GKTW is at the top of our list! Did you just call them and let them know you wanted to visit? The kids want to do the ice cream parlor, but I wasn't sure that was allowed...let me know the "scoop" lol, on returning to GKTW!

 

[Haybuggsmom]

She had a big, long day yesterday.
She was re intibate and put back on the vent. Which I was so happy for becuse she was working too hard.
Then they put in a central line. No more poking YEA!!!
Hopefuly more improvement on her x ray today!!

 

[maroo]

She had a big, long day yesterday.
She was re intibate and put back on the vent. Which I was so happy for becuse she was working too hard.
Then they put in a central line. No more poking YEA!!!
Hopefuly more improvement on her x ray today!!

aww!!

I hope she is feeling better soon!

 

[Mom2mitokids]

I want some! Where do I get some? James' tube is always giving me trouble!

Just go to www.buttonbuddies they have cute boy ones.

 

[Mom2mitokids]

I want some! Where do I get some? James' tube is always giving me trouble!

She had a big, long day yesterday.
She was re intibate and put back on the vent. Which I was so happy for becuse she was working too hard.
Then they put in a central line. No more poking YEA!!!
Hopefuly more improvement on her x ray today!!

Keeping Haylee in my thoughts and prayers.

 

[twinmum]

She had a big, long day yesterday.
She was re intibate and put back on the vent. Which I was so happy for becuse she was working too hard.
Then they put in a central line. No more poking YEA!!!
Hopefuly more improvement on her x ray today!!

I am a Wish Mum from 2008, and I do pop in from time to time...it's always wonderful to see the Wish Families supporting each other. I hope Haylee gains strength from this re-intubation and improves very soon. Uur sons (now 12!!!) were born > 3 months prematurely and we dealt with many reintubations/CPAP/low-flow decisions...2 steps forward, 1 step back, right...?

Our own Wish Kid Mark has cerebral palsy and some medical issues, but is doing great right now.

Sending prayers that your daughter is feeling well enough to enjoy a joysous Christmas, in the hospital or at home!

Alison

 

[newdrama12]

I wonder what type of routers they need...seems like we could drum up some more to get donated...... I am going to work on that.

Got the answer to this question. They have 3 routers that are available from the media center and you can borrow them for 2 days. They have the MiFi 2200 by Novatel Wireless. The ones from Sprint. Here is a link to what they look like. http://reviews.sprint.com/5611v2/115/mifi-2200-by-novatel-wireless-reviews/reviews.htm

Here is the charger: http://www.oemcellphone.com/productdetail.asp?productid=5769&refid=froogle

 

[hollie1974]

So I think it would be a good idea to get Lily a medical alert necklace or bracelet for our time at Disney.....any suggestions as to where to buy a kids one? Any that are more stylish looking than just the standard ones? Since she is going to be 4 next month I want to find one that will appeal to her so she doesn't try to take it off.

TIA,
Hollie

 

[Haybuggsmom]

So I think it would be a good idea to get Lily a medical alert necklace or bracelet for our time at Disney.....any suggestions as to where to buy a kids one? Any that are more stylish looking than just the standard ones? Since she is going to be 4 next month I want to find one that will appeal to her so she doesn't try to take it off.

TIA,
Hollie

Haylee has two that have the beaded bracelets attached. They do make some really cute ones now. If you google it you can find it. Sorry I'd grab the name but still at PICU with Haylee. But they were fairly easy to find!

 

[Haybuggsmom]

Haylee had a restful day yesterday and a good night last night. Her "buddy" Mr Brian just went in for changover and they are going to try to take her off the tube again. Then she can get a bath!!! YEA!!! After 2 intibations, 1 EEG and 5 days in the hospital I think she will LOVE that!!!
I can feel a good day instore!!!

 

[wishin' on a star]

I hope Haylee has a good day today!! Keeping her in my prayers.

 

[Redwavess]

Haylee had a restful day yesterday and a good night last night. Her "buddy" Mr Brian just went in for changover and they are going to try to take her off the tube again. Then she can get a bath!!! YEA!!! After 2 intibations, 1 EEG and 5 days in the hospital I think she will LOVE that!!!
I can feel a good day instore!!!

Yeah for a good day and a bath!! It is funny how the little things mean so much when you are in the hospital. Here is hoping that the word home will be in your future soon!!

Sending more prayers and good thoughts to you and your whole family.

 

[Redwavess]

Hi

I have a quick question. For those of you who have been on wish trips already... What are your feelings about the GKTW theme nights.

We are going during Presidents week so the parks are open later. From reading TR it seems that the theme nights are a highlight of the trip. We are a ride loving family, so part of me thinks stay at the parks. The other part of me wants to leave early take Mallory to the theme nights at GKTW.

Please share your experiences with me? What is your advice here?

Sorry for making a quick question so long!! Thanks so much for help with this!!

I hope all of your Christmas preparations are going great!! Merry Christmas!!

 

[jj0plin]

Haylee had a restful day yesterday and a good night last night. Her "buddy" Mr Brian just went in for changover and they are going to try to take her off the tube again. Then she can get a bath!!! YEA!!! After 2 intibations, 1 EEG and 5 days in the hospital I think she will LOVE that!!!
I can feel a good day instore!!!

That's awesome!! I think Elliot went weeks without a bath when we lived at the hospital and he had his port accessed. I was so excited when I finally got to give him a good scrubbing in the tub!

 

[hollie1974]

Haylee had a restful day yesterday and a good night last night. Her "buddy" Mr Brian just went in for changover and they are going to try to take her off the tube again. Then she can get a bath!!! YEA!!! After 2 intibations, 1 EEG and 5 days in the hospital I think she will LOVE that!!!
I can feel a good day instore!!!

Yay!!

 

[maroo]

Hi

I have a quick question. For those of you who have been on wish trips already... What are your feelings about the GKTW theme nights.

We are going during Presidents week so the parks are open later. From reading TR it seems that the theme nights are a highlight of the trip. We are a ride loving family, so part of me thinks stay at the parks. The other part of me wants to leave early take Mallory to the theme nights at GKTW.

Please share your experiences with me? What is your advice here?

Sorry for making a quick question so long!! Thanks so much for help with this!!

I hope all of your Christmas preparations are going great!! Merry Christmas!!

This totally depends on what your family wants to do...

Personally...I would focus on the Christmas party (get there early and see Santa first) and maybe one other one that your family is interested in. It totally depends on the age of your kids, etc.

I think most MAW families make all of these plans (and I would - because the more you plan the more you learn about the parks and the many options) - but then their plans go out the window.

Many, many families have a magical moment happen at one of the party nights they were not even intending to go to...


Techically, you should be able to get through the parks pretty fast...but...there have also been some magical moments had really late at the parks, too...


What is your family into? Do they like the sound of the parties? Or would they be more excited to stay late at the parks and hang out?


My new plan for Disney is to make a hugely detailed plan of where we are going to be and when we are going to be there - and then show up ready and willing to do anything - and just let the trip unfold as it may. I have my research and ADR's and such...but also am willing to toss it all if we just decide we would rather do something else entirely.

 

[alaskanabbott]

Hi

I have a quick question. For those of you who have been on wish trips already... What are your feelings about the GKTW theme nights.

We are going during Presidents week so the parks are open later. From reading TR it seems that the theme nights are a highlight of the trip. We are a ride loving family, so part of me thinks stay at the parks. The other part of me wants to leave early take Mallory to the theme nights at GKTW.

Please share your experiences with me? What is your advice here?

Sorry for making a quick question so long!! Thanks so much for help with this!!

I hope all of your Christmas preparations are going great!! Merry Christmas!!

We LOVE the rides too! Our kids are 6, 10,13, 13, 15, 18- so we honestly thought that GKTW would be our place to sleep and eat and not much more- boy were we wrong!!! First off, all the kids wanted to swim as much as possible in the pool- and we had ice cream twice a day, after breakfast and as soon as we got back to the village at night. Our theme park days we expected to get there early (at opening) and leave at closing. We never got to a park before 11am, because the kids were so busy playing at GKTW they didn't WANT to leave! Then, because of the magic button we would ride every ride by 7pm....and just want to head back to the village for dinner and the nights entertainment. My whole family though Christmas at the village was the best part of our trip. James had been in the hospital half of his Christmases so it was like we were given a freebie- and it was the best "Christmas" we can remember! We went to Sea World on our "Christmas" night b/c we knew SeaWorld closes early. There were a few nights the kids didn't care about, and those nights were our late nights. If I could do it again I'd say enjoy GKTW while you are there, b/c you can go back to WDW, but you're only a "guest" at the village once!

 

[tinytreasures]

Redwavess
we didn't do any of the theme nights, except for meeting Santa. My kids need their sleep and Ella freaked out every time she saw someone in costume so it was just easier for us to pass them up. NOW I wish we would have looked into them more then we did and hope to do some on Avy's Trip

 

[jj0plin]

I got a call from Make a Wish today!! They called to let me know that Elliot's doctors approved him for a wish and that they would send a wish granter out within the next few weeks! I am so excited!